On February 28, 2019, we celebrated the 12th annual International Rare Disease Day at the shopping mall Rivetoile in Strasbourg. It was a day full of information, sharing and fun! Check it out for yourself:
Photo Booth:
www.giforama.fr/rarediseaseday
Alsace 20 ( starting at 6:24)
https://www.alsace20.tv/VOD/Actu/JT/Jeudi-28-fevrier-Votre-JT-tout-en-images-1DwTpVTbag.html
YouTube
And don’t forget: the 13th edition is coming to Strasbourg on Saturday, February 29, 2020! More information about this “rare” event coming soon!
In Germany, RARENT also participated in a 2-day BBI (Bed and Bench Immunology) seminar on February 28 and March 1, 2019. The theme of the seminar was immune deficiencies.